Sickle cell disease is an inherited blood disorder. Learn about the signs and symptoms, potential treatments and when to call 911.
There are three main types of sickle cell disease. Learn how each type is inherited (passed down in families) and how it affects hemoglobin.
An easy-to-understand overview of sickle cell disease for teachers.
Learn about different types of communication and find out why good communication is important when you have sickle cell disease.
Sickle cell disease symptoms can be different for each person, but the most common symptoms are anemia and pain. Read about why these symptoms happen in people with sickle cell disease.
Your child's health-care team may offer stem cell transplants to treat your child's sickle cell disease. Learn about the treatment, including its benefits and risks.
This program is for teens aged 12 to 18 and their caregivers. It is designed to help teens learn how to better manage and live with sickle cell pain.
Learn about sickle cell disease, including its signs and symptoms and how it's treated. Also find information, tips and stories from other teens to help you manage sickle cell pain.
Learn what sickle cell disease is, how someone might get sickle cell disease and how common it is.
Diet and exercise directly affect your child’s sickle cell disease and how they feel. Read about how a healthy diet, enough water and regular exercise can help manage sickle cell disease.
This program is for teens aged 12 to 18 and is designed to help you learn how to better manage and live with your sickle cell pain.
Learn about the different sections and topics in the Sickle Cell Disease Learning Hub and what to expect from each one.
Your child's health-care team may offer red blood cell transfusions to treat your child's sickle cell disease. Learn about the treatment, including its benefits and risks.
You and your child may be asked to join a clinical research trial or other types of research to help research teams study new treatments and better understand the impact of sickle cell disease on families. Learn about types of research and where to find more information about sickle cell disease research.
In addition to anemia and pain, some people with sickle cell disease can have other less common complications. Learn about some of the complications that can happen because of sickle cell disease.
Research can help health-care providers test new treatments and help them learn how sickle cell disease affects patients and their families. Learn about the risks and benefits of participating in research and about giving your consent to participate.
Teens with sickle cell disease may need encouragement to become more independent with taking their medications as instructed, filling their prescriptions and making clinic appointments. Learn what you can do to encourage your teen to manage their condition independently.
You may be asked to join a clinical research trial or other types of research to help research teams study new treatments and better understand the impact of sickle cell disease on families. Learn about types of research and where to find more information about sickle cell disease research.
Managing and treating sickle cell disease may involve different types of treatments and medications. Learn what these are and why it is important to talk to the health-care team about all your child's treatment and medications.
Your health-care team may offer red blood cell transfusions or stem cell transplants to treat your sickle cell disease. Learn about both treatments, including their benefits and risks.
Children with sickle cell disease (SCD) can participate in physical activity as long as they have more frequent rest periods and increased hydration. Academically, most children with SCD will perform as well as their peers.
Learn about some of the accommodations that may be available to make school more comfortable for your teen with sickle cell disease. Also find tips for communicating your teen's needs to their teachers.
When you have a child with a complex health condition it is a good idea to write a letter to your child's school to give them the information they need.
Learning Hub
